Sunday 1 September 2013

Change - noticing how change feels


I've been thinking a lot about changes in my life, noticing how I react to change and how many feelings are triggered because of change.  This summer it has felt like there were a lot of changes in my life.  Some I knew were coming, such as the one I am fully experiencing for the first time this morning - there are now only 3 people living in our house.  Paula was married in June and Kaitlyn went to University yesterday.  The girls were early risers, and often in morning they would be gathered with me in the kitchen for an early morning coffee and chat.  Not today. Today starts the different, quieter mornings...as my guys like to sleep in and they are not all that chatty when they do awake.  It's not bad, in fact it is very good for a multitude of reasons...but at the same time it's difficult and amongst all the happiness I am feeling about these changes there are some sad spots. 

Change associated with health care...that I have been really noticing this past week.  How quickly a day can change and how it makes me feel, the phases and variety of emotions that go with change.  Last week I had a consultation booked with my radiation oncologist, to look at the recent CT scan and see if there was any possibility of radiation treatment for the tumors.  The day started out fun, traveling by train with my sister to Montreal as we had so much to catch up on that we talked the entire trip, non-stop actually and time flew by.  Arriving at the hospital in good time, I was checked in and ready to see the doctor as 12:45...perfect.  I felt so prepared, with my scans, past radiation reports, questions written down...ready to meet the doctor and discuss my options.  Boom...change.  2 hours later the doctor still has not seen me.  Why does not matter to my story, but trust me, at the time I sure wondered that a lot!  I had to make a decision...because the train home left at 4pm.   So quickly we had to think of as many options as we could, and decide on our next steps.  I opted to leave my information with his secretary, along with a note so the doctor could review and hopefully phone me.  But it was so stressful!!!  and I kept questioning myself.  Should I do this, should I have done that?  As we made our way out of the hospital, through the subway  and onto the train I noticed my range of emotions.  Denial as the clocked ticked away in the waiting room...no, this is not happening, he will call me into his office any minute now, there is still time for the consultation.  The calm discussing of what to do with the secretary...me saying oh it's okay, it will work out.  Walking away from the hospital and that appointment that felt like it had cost so much to get to (in time away, planning and money) in a calm surreal state.  All through the subway I questioned myself...why didn't I be more forceful at the hospital, should I have stayed overnight...all should have, could have thoughts.  By the time I got to the train I was getting really angry at the doctor.  Then sitting on the train I felt like crying, just so let down and deflated.  During the ride home I moved into what I think of as buffer time...I just let it rest, not actively think about it, let it go for a while. 

What actually happened is the doctor did look at my information the next day, phoned and left me a message saying a couple more tests were needed before he could determine my radiation options and he would have those booked for me.   These tests resulted in more change that I struggled with.  First was the call to go for a PET scan, which meant a full day away Tuesday.  The same as the changes with my daughters recently, this change would result in something I wanted to happen but it was still hard adapting.  This was the day we had planned to celebrate my daughter's birthday with a camping trip, but we had to change.  This makes me mad about cancer, that it gets to play the trump card in life.  Everything else has to change to accommodate the cancer card.  I do know that there is always choice, but to be honest, this is how I was feeling at the time.  Kaitlyn had an awesome attitude about the appointment, and opted to cancel the camping and instead travel to Montreal to the appointment with me.  We turned it into a good day, and it makes me happy when my kids show me they have developed the ability to alter plans and turn things around so it's a positive. 

Wednesday was a tough day.  I was tired from not sleeping well, the travelling and testing and I was behind at work.  And now I find I have another test to go for, the next day in Montreal again.  I was honest and open with those around me...I let them know I was struggling.  And they helped me.  Had of I tried to handle it all on my own, hide the struggles and put on a brave front I probably would have ended up really stressed inside, and cranky on the outside.  Instead the day got much better.  Folks at work stepped up to assist me, and then my daughter Paula called with a wonderful surprise...she had gotten the day off work and would go to Montreal to the test with me.  This changed everything.   The day ended up being awesome, giving Paula and I time together. 

This is not a deeply reflective blog, more an observance.  Reading back over it, I don't like the sound of myself.  Where is my gratitude in all this?  I was surprised at the range of emotions I experienced when faced with change. Things change, all the time.  Sometimes we see the change coming and sometimes it a surprise.  Sometimes its a small ripple and sometimes its a huge wave.  But always, there is change.  Like a flowing river, life is always moving, adapting, changing course - fluid.  That is the secret I suppose, to stay fluid.  Every moment, every "thing", it's something we are going thru.  And there is the key word...thru.  We are always going thru.  We don't stay stuck in any one situation.  Like the river, our strength comes from being fluid.  Fluid strength. 

ps...here's where I am at in my cancer journey details:
- June Ct scan shows 3 small tumors are growing
- next step is information gathering - consult with radiation oncologist and surgeon, get their opinions
- more information from tests - PET scan, renal function test, another CT scan
- make a decision - take all gathered information to consult with oncologist in Montreal, review, assess and decide on a treatment plan

Funny, in writing this I already see how I am relying on the planning to give me a sense of control.  I don't think this is wrong, it seems necessary and practical to plan these steps out but in reflection I will endeavour to remain more fluid about changes that may happen.

Change;  how it makes me feel, what I do when I see it coming, how I react when is happens suddenly, watching myself experience change - interesting.  Thought provoking. 

Adding on a couple of days later....
Interesting how things pop up when you need them...I was looking for this a few days ago when I was feeling overwhelmed by the changes in my life recently...and today I found it when cleaning up my old emails. Give it a listen if you like.  I am not a Buddhist, but I was able to appreciate much of what she says about change and permanence. 
http://www.youtube.com/watch?v=MIo13Lqc4Rg

2 comments:

  1. Thank you for your honesty Teresa. I can certainly relate. :-) I am sure you already know every mind game and trick in the book when it comes to trying to stay positive in the face of unrest, but I'll share this piece of personal ammunition anyway: unexpected change often makes way for an unexpected blessing. That said, keeping it real is so important. If your feeling like crap - let it all hang out to dry, otherwise it will pop up somewhere else. Keep writing. Your words are timeless..

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  2. I never stop marveling at your capacity to adapt and make the best of really tough times. You deal with this cancer with such grace. You really are my hero. love ya sis.

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